Genevieve’s treatment was similar to yesterday. She experienced less pain while hooked up to the machine and shortly after but it came back pretty fast- maybe 20 minutes after being disconnected. When her pain comes back it comes back stronger.
The highlight was at the end of the treatment when got to meet another mom & daughter that I met through a Facebook group for parents of kids with CRPS. We chatted for a few minutes and made plans for lunch the next day.
Genevieve and did a little running around to CVS and the dollar store to pick up some necessities and just the 2 short trips really wore her out. She was in a lot of pain that evening. We stopped by the local YMCA to see about using the facilities (still working on that) and I made an appointment at a physical therapy place with a warm pool. We need to get her back in the pool.
We had dinner at the Ronald McDonald House. Volunteers come in and cook dinner every night for the people staying here. It is such a gift. We are so thankful we get to stay here.
Holding out hope for a little more progress tomorrow...
Here Dr D had her adjusting her own dials. He explained it that her body would be more receptive if she took some control, opposed to tensing up and waiting for something to happen.
