I don’t know what this space is yet. A place to keep family and friends informed, maybe. Perhaps it’s where I will document our journey to serve as a resource to others going through the same thing (it seems we have become part of an exclusive club where I would rather not have a membership). Or this may just be a dumping ground for all my innermost thoughts; the good, the bad, and the really really bad. Either way, I just feel like I should be putting words down somewhere so I guess this will be the place.
There was a time where writing helped me process things. Maybe that’s why I’m having writer’s block. Because I don’t want to process this…
Genevieve has CRPS.
Complex Regional Pain Syndrome, formerly known as RDS - Reflex Sympathetic Dystrophy.
Summarized from the RSDS.org website
CRPS/RSD is a rare chronic neuro-inflammatory disorder. It occurs when the nervous system and the immune system malfunction as they respond to tissue damage from trauma (including surgery). The nerves misfire, sending constant pain signals to the brain. The level of pain is measured as one of the most severe on the McGill University Pain Scale.
You can read more about it here and here
Genevieve is in the early stages of this.
That's all I can write for tonight.
There was a time where writing helped me process things. Maybe that’s why I’m having writer’s block. Because I don’t want to process this…
Genevieve has CRPS.
Complex Regional Pain Syndrome, formerly known as RDS - Reflex Sympathetic Dystrophy.
Summarized from the RSDS.org website
CRPS/RSD is a rare chronic neuro-inflammatory disorder. It occurs when the nervous system and the immune system malfunction as they respond to tissue damage from trauma (including surgery). The nerves misfire, sending constant pain signals to the brain. The level of pain is measured as one of the most severe on the McGill University Pain Scale.
You can read more about it here and here
Genevieve is in the early stages of this.
That's all I can write for tonight.
